Rambling thoughts of things..
I started this blog in response to another blog. I was so angry after reading it. Interesting what motivates me. I think it was the disillusionment at finding out medical personnel were human. I think I was still looking for help and now I see that just isn't going to happen. I have had so many tests done and I don't want to do that anymore. I will have to do my own research and figure out this on my own. Hm, wonder where I can get a lab to run tests? I guess I will have to learn to draw my own blood. After all, I wouldn't want to trouble anyone else. This is so ridiculus.
Seriously ridiculus.
Thursday, May 15, 2008
Wednesday, May 14, 2008
Fibromyalgia awareness
As I was sitting here, after coming home from work, I read an email a friend had sent me. I was appalled at the way people talk to one another! I simply couldn't believe that the person writing was a health care professional. I could be wrong, but I think that is what was said. (Monkey Girl I am talking about you.)
I have been diagnosed..(professionally, by a real MD no less..) of having Fibromyalgia, as well as mixed connective tissue disease. I have had all the tests, I take pain meds every morning and every night along with muscle relaxants. I pay my way, have health insurance, and a rheumatologist to back up my DX's.
I am so pissed off right now. How dare you sit in judgement on me? You don't know me. You don't know how sometimes I have to crawl to get to the bathroom in time to throw up. I don't smoke, I don't drink. I take only the meds prescribed and nothing else. I can't sleep for more than 3 hours at a time because it hurts so damn much I have to get up and move. I can't stop working. If I do, I am afraid I will simply shut down. I make myself get up and get out of the house. I am not on disability, I have no desire to be on disability. I want to be able to climb my stairs without hurting so badly that tears run down my face.
I want you to understand. But you have totally ignored what your job is. You should not be working in the health field. Your job is to help people and not to judge them. You don't have that right. EVER. I have never gone to the ER for fibro pain. HOWEVER, I did go to the ER for pain in my gall bladder, was given med and sent home. I then actually had to have my gall bladder out. Wow, how odd. The ER sent me home because they saw on my chart I have fibro. They didn't even run tests.
If this is you, and you treat your patients this way guess what. I am a business person. Medicine is a business and you are not a good business risk.
I have been diagnosed..(professionally, by a real MD no less..) of having Fibromyalgia, as well as mixed connective tissue disease. I have had all the tests, I take pain meds every morning and every night along with muscle relaxants. I pay my way, have health insurance, and a rheumatologist to back up my DX's.
I am so pissed off right now. How dare you sit in judgement on me? You don't know me. You don't know how sometimes I have to crawl to get to the bathroom in time to throw up. I don't smoke, I don't drink. I take only the meds prescribed and nothing else. I can't sleep for more than 3 hours at a time because it hurts so damn much I have to get up and move. I can't stop working. If I do, I am afraid I will simply shut down. I make myself get up and get out of the house. I am not on disability, I have no desire to be on disability. I want to be able to climb my stairs without hurting so badly that tears run down my face.
I want you to understand. But you have totally ignored what your job is. You should not be working in the health field. Your job is to help people and not to judge them. You don't have that right. EVER. I have never gone to the ER for fibro pain. HOWEVER, I did go to the ER for pain in my gall bladder, was given med and sent home. I then actually had to have my gall bladder out. Wow, how odd. The ER sent me home because they saw on my chart I have fibro. They didn't even run tests.
If this is you, and you treat your patients this way guess what. I am a business person. Medicine is a business and you are not a good business risk.
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